Immunocompromised Resources

Resources for Patients 

Community Support 

General Patient Advocacy Resources 

• Agency for Healthcare Research and Quality’s 20 Tips To Help Prevent Medical Errors 

• Got Transition® (transition from pediatric to adult care)  

• Patient Advocate Foundation  

• Patient Empowerment Network  

• YARR Healthcare Guide  

Cancer Organizations 

• American Cancer Society  

• American Institute for Cancer Research  

• Cancer Research Institute  

• Leukemia & Lymphoma Society’s Managing Your Cancer Resources 

• Livestrong Foundation  

• Lymphoma Research Foundation  

• National LGBT Cancer Network 

Autoimmune & Primary Immunodeficiency Organizations 

• The AIP BIPOC Network 

• Autoimmune Association  

• Global Autoimmune Institute  

• Global Autoimmune Institute’s Autoimmune Organizations List  

• Immune Deficiency Foundation (Primary Immunodeficiencies) 

• Immunocompromised Collaborative 

• Jeffrey Modell Foundation (Primary Immunodeficiencies)  

• Lupus Foundation of America  

Infectious Disease Organizations 

• The AIDS Institute   

• IDSA 

• International Society for Infectious Diseases   

• National Foundation for Infectious Diseases  

Transplant Organizations 

• American Kidney Fund  

• American Society of Transplantation 

• UNOS (United Network for Organ Sharing)  

Support Groups & Community Connections 

• AIP BIPOC Network 

• American Cancer Society  

• ACS Reach To Recovery 

• Autoimmune Association  

• Cancer Survivors Network   

• Center for Chronic Illness  

• Our Odyssey (young adults) 

Healthcare Provider Resources 

• American Public Health Association  

• Association of Nurses in AIDS Care  

• Association for Professionals in Infection Control and Epidemiology  

• CDC’s Clinical Guidance for Immunocompromised Patients 

• Extra layer of protection  

Learning Resources 

US Government Resources 

• Centers for Disease Control  

• Department of Defense’s Congressionally Directed Medical Research Program 

• Food and Drug Administration  

• Genetic and Rare Diseases Information Center  

• National Cancer Institute  

• National Center for Advancing Translational Sciences  

• National Heart, Lung, and Blood Institute  

• National Institute of Allergy and Infectious Diseases (NIAID)  

• National Institute of Arthritis and Musculoskeletal and Skin Diseases  

• National Institute of Diabetes and Digestive and Kidney Diseases  

• National Institute on Minority Health and Health Disparities  

• National Library of Medicine’s Art of reading a journal article: Methodically and effectively 

General Immunocompromised Resources 

• Global Genes’ Resources 

• ICER (Institute for Clinical and Economic Review)  

• Impact of Social Sciences’ How to read and understand a scientific paper: a guide for non-scientists 

• ONC’s The Guide to Getting & Using Your Health Records 

• PCORI (The Patient-Centered Outcomes Research Institute)  

• Patient Empowerment Network’s 7 Ways To Access Medical Journal Articles For Free  

• People’s CDC  

Career & Education 

Employment  

• Job Accommodation Network  

Scholarships 

• EveryLife Foundation for Rare Diseases’ #RAREis Scholarship Fund  

Financial Support 

Grant & Financial Assistance 

• Accessia Health’s Healthcare Financial Assistance  

• American Pain and Disability Foundation 

• The Assistance Fund 

• Aunt Bertha (FindHelp)  

• Cancer Care’s Financial & Co-Payment Assistance for Cancer Patients  

• Cancer Financial Assistance Coalition 

• Chive Charities 

• Dental Lifeline Network  

• Dollar For  

• Good Days 

• Health Resources & Services Administration Grant Programs (for living organ donors) 

• HealthWell Foundation’s Diseases Fund 

• Little Zebra Fund  

• ModestNeeds.Org’s Self-Sufficiency Grant 

• National Living Donor Assistance Center  

• The National Museum of Dentistry’s Funds and Endowments 

• Patient Advocate Foundation 

• Co-Pay Relief Program 

• Financial Aid Funds 

• Patient Access Network Foundation 

• Patient Assistance Program (Colorado only)  

• National Cancer Institute  

• NORD Patient Assistance Program (RareCare) 

• Umbra Health Advocacy  

• Undue Medical Debt 

Prescription Information & Access 

• Free Rx Plus 

• Good Days 

• GoodRx 

• NeedyMeds 

• Professional Prescription Assistance  

Travel Assistance 

• Air Care Alliance’s Patient and Medical Transport  

• Air Charity Network  

• Angel Flight East  

• Children’s Flight of Hope  

• Corporate Angel Network  

• EveryLife Foundation for Rare Diseases’ Rare Giving  

• Gift of Life Donor Program’s Regional Transplant Family Support Grant 

• Medicaid HopeLift 

• Mercy Medical Angels  

• Miracle Flights 

• Patient Airlift Services 

• Wings of Hope 

General Financial Information 

• Consumer Assistance Program (CMS)  

• Consumer Financial Protection Bureau  

• Family Doctor’s “Health Insurance: Understanding What It Covers”  

• Federal Trade Commission’s Debt Collection FAQs  

• Government Disability Benefit Finder 

• HealthCare.gov’s Find Local Help Directory  

• Medicaid  

• National Cancer Institute’s Support Services List 

• Need Help Paying Bills 

• Patient Advocate Foundation’s National Financial Resource Directory  

• Triage Cancer®’s Toolkit for Navigating Finances After Cancer
  

As these resources are not managed by the Immunocompromised Association, we are not responsible for the currency, accuracy, or legality of the content from external links on the site. If you know of additional immunocompromised resources, have problems accessing any resources, or need help locating a different kind of resource, please reach out through the contact form or by emailing us at info@thinkofmeplease.org.